Move to Portland solves mystery, saving child's life
Call it mother’s intuition. “You know when something is wrong with your child,” Jessica Irie says. Trinity, her third daughter, had been crying nonstop and became easily winded from crawling.
The family was living in Florida where Trinity was diagnosed with a simple heart murmur and severe colic. However, Jessica had a gut feeling there was something more going on with her baby girl’s health.
After 18 months of feeling frustrated and desperate to help Trinity, the family packed up all their belongings and moved to Portland, Oregon. “We weren’t getting any answers; Trinity was slipping through the cracks,” Jessica says. “Our West Coast friends told us about the great health care at Randall Children’s Hospital.”
Soon after setting down new roots, Trinity had her first appointment with pediatric heart specialist Dr. Peter Chang. Within 15 minutes, Dr. Chang diagnosed her with Williams Syndrome—a rare genetic condition characterized by heart issues and extended periods of fussiness. “It was a miracle,” Jessica exclaims. “Everything fit into the puzzle that is Williams Syndrome.”
The family also learned that Trinity’s heart had a life-threatening problem often associated with Williams Syndrome. Nine days before her second birthday, Trinity underwent open heart surgery.
Now 7 years old, Trinity is doing great. “It was a huge blessing that we came here,” Jessica exclaims. “I truly believe the universe brought us to Randall Children’s Hospital to save our daughter’s life.”
Being in the hospital can be stressful and isolating for kids and their families, especially over the holidays. On Thursday, December 13, several Portland area buildings, as well as the Morrison Bridge will twinkle with blue lights in honor of our courageous patients and their families for a Season of Light.
You can make a difference and brighten the spirits of young patients as they overcome rare conditions, fight cancer and heal from devastating injuries. Please send a message of encouragement to a hospitalized child and make a gift to support the miracles—big and small—that happen every day at Randall Children’s Hospital.