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Neurofibromatosis Clinic

Our aim is to provide family-centered, multidisciplinary care.

Indications for referral

  • Multiple café au lait macules/birthmarks
  • Ocular lisch nodules
  • Cutaneous or plexiform neurofibromas, malignant peripheral nerve sheath tumors
  • Personal or family history of optic or central nervous system glioma
  • Personal or family history of acoustic neuroma/schwannoma
  • Multiple meningiomas, gliomas
  • Family history of neurofibromatosis

Conditions we diagnosis and treat

  • Neurofibromatosis type 1 (NF1)
  • Neurofibromatosis type 2 (NF2)
  • Legius syndrome
  • Schwannomatosis

Multidisciplinary support tailored to each patient’s specific needs

  • Audiology
  • Cardiology
  • Dermatology
  • Developmental pediatrics
  • Endocrinology
  • Ophthalmology
  • Oncology
  • Orthopedics
  • Otolargyngology
  • Physical Therapists
  • Neurology
  • Neuropsychology
  • Neuroradiology
  • Neurosurgery

Our providers


Randall Children's Hospital at Legacy Emanuel
Pediatric Development and Rehabilitation
2801 N. Gantenbein Ave., Suite 2225
Portland, OR 97227
Phone: 503-413-4505