Clinical and outcomes research
Research is hope
Each year, Legacy Clinical Research helps enroll patients, both children and adults, in some of the most advanced clinical trials available. Under the oversight of Serene Perkins, M.D., Director of Surgical and Clinical Research, at any given time Legacy patients are participating in more than 80 studies to determine the effectiveness of experimental drugs and medical devices. Participants in clinical trials gain access to new treatments before they are widely available. Search for Clinical Trials.
Using research to improve quality of care
Do you need a surgery? Do you need this medicine? Are you doing better after that hospital stay? These are just a few questions for which Shaban Demirel, O.D., Ph.D., seeks answers. As the senior clinical outcomes research scientist at LRI, he sifts through medical record data and patient surveys to learn what helps patients and what doesn’t.
Dr. Demirel works closely with clinical teams across Legacy to identify the most effective options for high-quality, cost-effective, patient-centered care. “Because everything is electronic now, I have a lot of data to create models that allow us to predict and individualize health care,” he says.
Thanks to a three-year pilot program funded by donors, Dr. Demirel has been involved with nearly 90 studies and has published three papers in scientific journals.
One of his published studies focused on family-centered rounds in the Pediatric Intensive Care Unit (PICU) at Randall Children’s Hospital at Legacy Emanuel. The findings revealed families felt more well-informed when they were included in daily, morning care team discussions. In addition, physicians discovered they had more time throughout the day to take care of patients.
“Research is all about collecting data, analyzing it and making conclusions that can change a policy or practice,” Dr. Demirel says. “Whether it’s the way we care for patients or the way we run a health system, it allows us to push into an era of totally customized medicine.”